EASEE® Family

In 2019, we initiated the first human implantation of an EASEE® device as part of a clinical trial.
Since that time, over 80% of study participants who initially received an implant have kept the device even after the end of the testing period. They decided they wanted to continue using the device because of the positive effects they experienced from EASEE®. One result of their decision is that our pool of experience has grown, which provides a foundation for future therapeutic decision-making.

Since I’ve had EASEE®, my whole condition and I myself have changed significantly.
Ibrahim Soyudogan, February 2022

Ibrahim is among the patients who became seizure-free as a result of EASEE®. In the video, he describes his history.
Other patients have stories that are similar to Ibrahim Soyudogan’s. They are also ready to share their experiences with other patients who find themselves facing a similar life situation.

We are planning to create a space for personal exchange

However, since personal exchange of this kind has to take place in a confidential setting, we are specifically setting up a so-called EASEE®-family area. In the future, patients who have implants will be able to use the serial number of their implant certificate to obtain access to this secure area. Then, we will conduct a monthly virtual information session where people in the process of deciding whether they want to use an EASEE® device can have their questions answered by experienced EASEE® users.

If you want to be informed about the timetable for opening the family area, please indicate your consent here for us to send you an e-mail about this subject.


Personal insights into the lives of EASEE® patients

Patient stories

Just being able to go out dancing or go on holiday? Epilepsy patients are often severely restricted in their daily activities. Despite numerous possible pharmacologic treatments, about 30 per cent of patients with epilepsy are still not adequately treated. The toll of suffering is great. Patients tell their stories.

Julian, 22 years, Heidelberg
I had my first Grand Mal attack when I was 12. In the following years, I suffered two or three attacks a day. My mesial temporal lobe epilepsy was not diagnosed until 2011. None of the medications reduced the number of attacks; instead, I was bothered by side-effects such as speech disorders and hallucinations. I would have preferred a less risky alternative to brain surgery to treat my epilepsy. But this was not an option in 2015.
Dr. Olga Simova, Hamburg Epilepsy Centre, Ev. Krankenhaus Alsterdorf gGmbH
Neuromodulation through electrical stimulation may be a good alternative for those epilepsy patients who do not respond to a therapy and where there is no possibility of surgically removing the "diseased” part of the brain. It can help some patients to return to work, maintain their relationship and social contacts and much more. It’s worth a try in any case. This is why the further development of stimulation methods such as EASEE® are so important. We have to make the most of every opportunity we have to help a patient.
Britta, 37 years, Hamburg
Medication helped me suppress my focal seizures for 15 years, but the attacks returned just one-and-a-half years after my son was born. I have been unable to work since 2015 and am currently a temporary pensioner. I suffer from impaired vision and speech disorders as a result of the medication, my perception is sometimes altered, I have put on weight and now have more spots than I had in puberty. My liver function tests aren’t all that good and I am also suffering slightly from osteoporosis. My experiences with mobile vagus nerve stimulation are not very happy ones and I am very scared of deep brain stimulation and the associated risks. Superficial brain stimulation would be a welcome alternative for me and one I can easily imagine testing.
Sophie (Pseudonym), Freiburg
I had my first epileptic seizure when I was 9 years old. I suffered from increased seizures for over 14 years. I was unable to communicate during this time and appeared to be impassive from the outside. The treatment with several different medications was unsuccessful, the surgical removal of the epileptic focus was out of question for me. Because of the low invasiveness, I decided to have EASEE® implanted. I was still in pain several days after the implantation. My hair has now grown back. Here and at the scar, I can hardly feel the electrode under my skin. Only with certain movements or when carrying heavy loads, do I sometimes still feel complaints in the chest. My seizures have become shorter over time and have become less stressful.